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Updated: Feb 18, 2019

Week 2 of Mayo is complete and answers have put a lot of uncertainty to rest.  We have a treatment plan.

As Mom and I are on our way home from Rochester I pulled out my computer to edit a video and I started falling asleep. WHAT? I don’t nap and I don't fall asleep in cars.  But I did today.

My appointment this morning with Neurology was a long awaited one and was consuming most of my mind space. While this is something I will continue to battle for the duration of my life I can’t keep living like I am right now. Something has to get better, right?! My thoughts have been constantly consumed with the thought that I would walk out of Mayo without a treatment plan or a doctor willing to help me.

I was wrong. I’m so glad I was wrong.

I actually walked into the appointment room and looked on the wall to see Dr. Phillip Low’s credentials on the wall. Most of you wouldn’t know this, but he is like THEE GUY. He has dedicated his life to studying Autonomic Dysfunction and his research has been continuously funded by the NIH for the last 30 years. I had not a clue he was the Neurologist I would see today. He only accepts internal referrals and has no wait list because there are too many patients that need to see him. You usually have to go through “weed out” appointments with other neurologists to get to him. 

Today I thank my lucky stars for aligning things to be so right.

Treatment plan in motion and I see him again in 3 months.

While my painsomnia hasn’t actually been too bad lately, i’m sure my REM cycle has had many disruptions with constant thoughts of treatment uncertainty. My mind is finally at ease and I honestly feel 1000 pounds lighter. I’m completely drained, but in the best way possible. I’m going to allow my body the rest it’s wanting to give me right now and hibernate. Peace out!

Remember, "Count your Rainbows, not your Thunderstorms!"

xoxo Kirsten 💕​

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