Today marks 12 years since I was diagnosed with Ehlers-Danlos Syndrome (EDS). 12 years! What?! How?! They can take that day and shove it...

I think we all know that in the health world, Mayo Clinic is considered the “Mother Ship” which is exactly where we are headed. While...

HAPPY RARE DISEASE DAY!!! 👊🏼 It’s only fitting that I tell you what is actually wrong with me today, right?!? I have a connective...

2016 —  You were the worst year of my life, but also the best.  Strange, right? How can that be? Remember, rainbows follow thunderstorms....